National Patient Information

Title of Leaflet Produced by Base Category Sub category Target audience
Information on Cleft Lip Northern and Yorkshire Cleft Lip & Palate Service Royal Victoria Infirmary General Lip New parents
Information on Cleft Palate Northern and Yorkshire Cleft Lip & Palate Service Royal Victoria Infirmary General Palate New parents
Information on Cleft Lip and Palate Northern and Yorkshire Cleft Lip & Palate Service Royal Victoria Infirmary Lip & Palate   New parents
Northern & Yorkshire Joint Cleft Lip and Palate Clinic Northern and Yorkshire Cleft Lip & Palate Service Royal Victoria Infirmary Clinics   New parents
Coming to see a Clinical Psychologist Northern and Yorkshire Cleft Lip & Palate Service Royal Victoria Infirmary Psychology Clinical psychologist New parents
Bullying Northern and Yorkshire Cleft Lip & Palate Service Royal Victoria Infirmary Psychology Bullying Young people
Don the Dinosaur has a videofluoroscopy Northern and Yorkshire Cleft Lip & Palate Service Royal Victoria Infirmary Diagnostic Videofluoroscopy Very young child + parent
So you need an Alveolar Bone Graft Northern and Yorkshire Cleft Lip & Palate Service Royal Victoria Infirmary ABG   Children and young people
Alveolar Bone Grafts Northern and Yorkshire Cleft Lip & Palate Service Royal Victoria Infirmary ABG   Young people
Transition Northern and Yorkshire Cleft Lip & Palate Service Royal Victoria Infirmary Psychology Transition Parents of chidlren 11+
Transitional Care for Young People Northern and Yorkshire Cleft Lip & Palate Service Royal Victoria Infirmary Psychology Transition Young people 11+
Feelings Northern and Yorkshire Cleft Lip & Palate Service Royal Victoria Infirmary psychology Transition Young people
Having a lip re-repair and rhinoplasty Northern and Yorkshire Cleft Lip & Palate Service Royal Victoria Infirmary Lip re-repair and rhinoplasty   Adults
Feeding and swallowing problems in Babies and Children Belfast Health and Social Care Trust Department of SLT Feeding and swallowing   Parents of babies/young children
Nasendoscopy Belfast Health and Social Care Trust Department of SLT Diagnostic Nasendoscopy Anyone undergoing procedure
Palatal videofluorscopy Belfast Health and Social Care Trust Department of SLT Diagnostic Videofluoroscopy Anyone undergoing procedure
Joint cleft palate clinic Belfast Health and Social Care Trust Regional Cleft Palate Service Clinics   Parents of children aged 2 1/2, 5, 10 and 15
Pharyngoplasty Belfast Health and Social Care Trust Regional Cleft Palate Service Speech ops   Adults and parents
Audit and Database Information Belfast Health and Social Care Trust Regional Cleft Palate Service General Databases Parents
A guide to Orthognathic surgery North Thames Cleft Centre GOS Orthognathic surgery   Parents/patients
Orthodontics for children with cleft lip/palate North Thames Cleft Centre GOS Orthodontics   Parents/older children
SLT for children with cleft lip/palate North Thames Cleft Centre GOS Speech Therapy Speech Therapy - general Parents
Cleft palate repair North Thames Cleft Centre GOS Palate Repair   New parents
Hearing in babies with cleft palate North Thames Cleft Centre GOS Hearing   New parents
Lip repair/lip revision North Thames Cleft Centre COS Lip repair Care after discharge New parents
Cleft Lip Repair North Thames Cleft Centre GOS Lip repair   New parents
Cleft Lip/palate and anaesthesia North Thames Cleft Centre GOS Anaesthesia   New parents
ABGs North Thames Cleft Centre GOS ABG   Parents older children
Going to the Palate Investigation Clinic West Midlands Regional Centre for Cleft Lip and Palate Birmingham Childrens Hospital Diagnostic Palate investigations Young children
Feeding a baby with cleft lip and palate West Midlands Regional Centre for Cleft Lip and Palate Birmingham Childrens Hospital Feeding and swallowing Feeding New parents
Your Alveolar bone Graft Operation West Midlands Regional Centre for Cleft Lip and Palate Birmingham Childrens Hospital ABG   Young children
Welcome to the Cleft Lip and Palate Clinic West Midlands Regional Centre for Cleft Lip and Palate University Hospital Birmingham Clinics   New parents
Why do clefts happen? West Midlands Regional Centre for Cleft Lip and Palate Birmingham Childrens Hospital General   New parents
Palate Investigation Clinic West Midlands Regional Centre for Cleft Lip and Palate Birmingham Childrens Hospital Diagnostic Palate Parents
Cleft Lip and Palate - the Care of your Child West Midlands Regional Centre for Cleft Lip and Palate Birmingham Childrens Hospital General Information Folder Parents
Your speech assessment South Wales South West Managed Clinical Network Morriston Hospital Speech Therapy Speech assessment Parents
Your 18 month speech assessment appointment South Wales South West Managed Clinical Network Morriston Hospital Speech therapy Speech assessment 18 mths Parents
Your 3 year speech assessment appointment South Wales South West Managed Clinical Network Morriston Hospital Speech Therapy Speech assessment 3 years Parents
Your 5 year speech assessment appointment South Wales South West Managed Clinical Network Morriston Hospital Speech Therapy Speech assessment 5 years  
Alveolar Bone Graft South Wales South West Managed Clinical Network Frenchay Hospital ABG   Children
Preparation for pharyngoplasty surgery Cleft Net East Addenbrookes Hospital Palate repair Pharyngoplasty Parents
Preparation for cleft palate surgery Cleft Net East Addenbrookes Hospital Palate repair Preparation New parents
Preparation for cleft lip surgery Cleft Net East Addenbrookes Hospital Lip repair   New parents
Pharyngoplasty - following discharge Cleft Net East Addenbrookes Hospital Palate repair Pharyngoplasty Parents
Cleft palate repair - advice following discharge Cleft Net East Addenbrookes Hospital Palate repair Following discharge Parents
Cleft lip Repair - following discharge Cleft Net East Addenbrookes Hospital Lip Repair Following discharge Parents
Bilateral Cleft Lip Cleft Net East Addenbrookes Hospital General Bilateral cleft lip - Parent Folder New Parents
Osteotomy operations for people with Cleft Lip/palate Cleft Net East Addenbrookes Hospital Orthognathic surgery Osteotomy  
The Paediatric Audiology Service; Glue ear and listening difficulties Cleft Net East Addenbrookes Hospital Hearing Glue ear and listening diffs  
The CRANE database; Recording information on children with cleft lip/palate Cleft Net East Addenbrookes Hospital General CRANE  
Support and Information from the Psychologist or Counsellor South West/South Wales Cleft Network Frenchay Hospital Psychology General All patients/new parents
Orthognathic Surgery North Bristol NHS Trust Frenchay Hospital Orthognathic surgery   Young people
Support and Information from the Psychologist or Counsellor South West/South Wales Cleft Network Frenchay Hospital Psychology General All ages
Alveolar Bone Graft Operation South Wales/South West Cleft Network Frenchay Hospital ABG   Children
Furlow Palate Repair South Wales/South West Cleft Network Frenchay Hospital Palate repair Furlow All patients
Hynes Pharyngoplasty South Wales/South West Cleft Network Frenchay Hospital Palate repair Hynes pharyngoplasty All patients
Pharyngeal flap South Wales/South West Cleft Network Frenchay Hospital Palate repair Pharyngeal flap All patients
Orthognathic surgery for patients with cleft lip and/or palate South Wales/South West Cleft Network Frenchay Hospital Orthognathic surgery   All patients
2 year speech and language assessment South Wales/South West Cleft Network Frenchay Hospital Speech   Parents

Summary of Categories

ABG
Sub Category Title of Leaflet
Operation So you need an Alveolar Bone Graft
Operation Alveolar Bone Grafts
  ABGs
  Your Alveolar bone Graft Operation
  Alveolar Bone Graft Operation
Anaesthesia
Sub Category Title of Leaflet
  Cleft Lip/palate and anaesthesia
Clinics
Sub Category Title of Leaflet
  Northern & Yorkshire Joint Cleft Lip and Palate Clinic
  Joint cleft palate clinic
  Welcome to the Cleft Lip and Palate Clinic
Diagnostic
Sub Category Title of Leaflet
Videofluoroscopy Don the Dinosaur has a videofluoroscopy
Nasendoscopy Nasendoscopy
Videofluoroscopy Palatal videofluorscopy
Palate investigations Going to the Palate Investigation Clinic
Palate Palate Investigation Clinic
Feeding and swallowing
Sub Category Title of Leaflet
  Feeding and swallowing problems in Babies and Children
Feeding Feeding a baby with cleft lip and palate
General
Sub Category Title of Leaflet
  Why do clefts happen?
Information Folder Cleft Lip and Palate - the Care of your Child
Bilateral cleft lip - Parent Folder Bilateral Cleft Lip
CRANE The CRANE database; Recording information on children with cleft lip/palate
Hearing
Sub Category Title of Leaflet
  Hearing in babies with cleft palate
Glue ear and listening diffs The Paediatric Audiology Service; Glue ear and listening difficulties
Lip
Sub Category Title of Leaflet
Lip Information on Cleft Lip
Lip and palate Information on Cleft Lip and Palate
Care after discharge Lip repair/lip revision
  Cleft Lip Repair
  Preparation for cleft lip surgery
Following discharge Preparation for cleft lip surgery
Lip re-repair and rhinoplasty
Sub Category Title of Leaflet
  Having a lip re-repair and rhinoplasty
Orthodontics
Sub Category Title of Leaflet
  Orthodontics for children with cleft lip/palate
Orthognathic surgery
Sub Category Title of Leaflet
  A guide to Orthognathic surgery
Osteotomy Osteotomy operations for people with Cleft Lip/palate
  A guide to Orthognathic surgery
  Orthognathic Surgery
  Orthognathic surgery for patients with cleft lip and/or palate
Palate Repair
Sub Category Title of Leaflet
Palate Information on Cleft Palate
  Cleft palate repair
Pharyngoplasty Preparation for pharyngoplasty surgery
Preparation Preparation for cleft palate surgery
Pharyngoplasty Pharyngoplasty - following discharge
Furlow Furlow Palate Repair
Hynes pharyngoplasty Hynes Pharyngoplasty
Pharyngeal flap Pharyngeal flap
Psychology
Sub Category Title of Leaflet
Transition Transition
Transition Transitional Care for Young People
Transition Feelings
General Support and Information from the Psychologist or Counsellor
Speech Therapy
Sub Category Title of Leaflet
  Pharyngoplasty
  2 year speech and language assessment
Speech Therapy - general SLT for children with cleft lip/palate
Speech assessment Your speech assessment
Speech assessment 18 mths Your 18 month speech assessment appointment
Speech assessment 3 years Your 3 year speech assessment appointment
Speech assessment 5 years Your 5 year speech assessment appointment

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 Craniofacial Society of Great Britain and Ireland - A Society for the study of Cleft Lip and Palate and other Craniofacial Anomalies

 The Craniofacial Society logo depicts the budding tree of knowledge with the motto 'Dies Diem Docet' - 'the day teaches the day' - education is never complete